Wednesday, September 12, 2012

5TH ANNUAL RETT SYNDROME AWARENESS MEETING AND SYMPOSIUM (NEW DELHI, INDIA)


The month of October is marked as “Rett Syndrome Awareness Month” all around the world. Indian Rett syndrome Foundation have been organizing the awareness programs for Indian Rett families and healthcare professionals from last four years and these have proved to be great success because of support of Rett Families, Doctors, Scientists and Researchers.
            This year IRSF is organizing and sponsoring its 5th annual Awareness meeting and symposium on “20th October 2012”. In this meeting, parents will be coming from all parts of India and the parents will get a chance to connect and interact with each other and share their views/suggestions/queries with each other and with Doctors/Scientists/therapists who will also be taking part in this meeting.
Date: 20th October 2012 (Saturday)
Time: 09.30 am – 8.00pm
Venue:
Conference Hall, First floor, JLN auditorium building, Near Central Lawn,
All India Institute of Medical Sciences, New Delhi-110029
Who can Attend:
Parents, Doctors, Scientists, Researchers, Caregivers, Therapists, Relatives, Students
We hope that this year again, the meeting will get your support. So kindly join us for this cause. We are also looking forward for participation of Volunteers and Sponsors for this event. Please do reach us at below mentioned contacts to register for the event. 

Thanks, Regards,
Website: www.rettsyndrome.in
E-mail: info@rettsyndrome.in
            info.rett@yahoo.com
            admin@rettsyndrome.in

Monday, July 9, 2012

Sleep problems in Rett syndrome

A very interesting article by Dr. Young and colleagues

Please click here to read the full article

Source: NCBI-PUBMED

Bone Mineral Content and Density in Rett Syndrome and Their Contributing Factors


A very interesting article by Dr. Jefferson and colleagues

Please click here to read the full article


Source: NCBI-PUBMED

Patients With Rett Syndrome Sustain Low-Energy Fractures


A very interesting article by Dr. Roende and colleagues

Please click here to read the full article


Source: NCBI-PUBMED

Bone Mass in Rett Syndrome: Association with Clinical Parameters and MECP2 Mutations

A very interesting article by Dr. Shapiro and colleagues

Please click here to read the full article


Source: NCBI-PUBMED



Thursday, April 12, 2012

Neurodevelopmental disorders: Transplantation therapy in a mouse model of Rett syndrome.

Interesting article by Dr. Ellen Bible




Note: Click on the title to read the full article

Source: NCBI-Pubmed

Neurogenetics: Advancing the “Next-Generation” of Brain Research

Another interesting Research findings from Dr. Huda Zoghbi's Lab


Note: Click on the title to read the full article

Source: NCBI-Pubmed

Adult neural function requires MeCP2

Interesting Research finding from Dr. Huda Zoghbi's Lab


Note: Click on the title to read the full article

Source: NCBI-Pubmed

For Huda Zoghbi, collaboration is the key to unlocking the secrets of neurobiology

Please click on the title to read the full Interview

Source: NCBI-Pubmed

Wednesday, February 29, 2012

7th World Rett Syndrome Congress (June 22-26th, 2012)

About the World Rett Syndrome Congress

The International Rett Syndrome Foundation invites you to participate in the 2012 World Rett Syndrome Congress, hosted for the first time in the United States.

This prestigious global meeting, orchestrated by the world's leading Rett syndrome scientists, clinicians, educators, and family representatives, consists of four (4) distinct meetings over the course of four days, Friday through Tuesday, June 22-26, 2012. There is a separate registration fee for each part of the program, allowing attendees to participate in the Congress at the level relevant to their areas of expertise. This will be an unparalleled opportunity to be part of “Charting the Course” forward for Rett syndrome. Led by pioneering experts in Rett syndrome and related disorders, all professionals including researchers, clinicians, allied health practitioners, educators, parents, family members and caregivers will benefit from the meaningful series of sessions and tracks.

Location of the Congress:

Intercontinental Hotel New Orleans 444 Saint Charles Avenue | New Orleans, LA, 70130 | United States

For more information, please click on the title or copy and paste this link in your browser

http://worldcongress.rettsyndrome.org/


Source: Internation Rett Syndrome Foundation