Interesting article by Laura Baroncelli and Colleagues.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
This Blog of Indian Rett Syndrome Foundation (IRSF) is dedicated to all Rett Angels and their families. This blog is to raise global awareness of Rett syndrome. Please join and share this blog with everyone.
Monday, December 5, 2011
A role for glia in the progression of Rett’s syndrome
Interesting article by Daniel T. Lioy.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
INSIDE THE MINDS OF MICE AND MEN
Interesting article by MONYA BAKER.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Subclinical myocardial dysfunction in Rett syndrome
Interesting article by Claudio De Felice and colleagues.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
MeCP2 and Rett syndrome: reversibility and potential avenues for therapy: A Review Article
Interesting article by Kamal K.E. GADALLA and colleagues.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Folinic Acid supplementation in Rett syndrome patients does not influence the course of Disease: A Randomized Study
Interesting article by Eveline E. O. Hagebeuk and colleagues.
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Note: Please click on the title to read the full article.
Source: NCBI-PubMed
Movement Disorders Emergencies in Childhood
A very Interesting article by F.J. Kirkham and Colleagues.
Note: Click on the title to read the full article.
Source:NCBI-Pubmed
Note: Click on the title to read the full article.
Source:NCBI-Pubmed
Rett Syndrome: Exploring the Autism Link
A very Interesting article by Dr. Alan K Percy.
Must read.
Note: Click on the title to read the full article.
Source:NCBI-Pubmed
Must read.
Note: Click on the title to read the full article.
Source:NCBI-Pubmed
Tuesday, November 8, 2011
Rett Syndrome Research Trust Launches Awareness Campaign in Iconic Times Square Location
Trumbull, CT (PRWEB) November 03, 2011
The Rett Syndrome Research Trust is pleased to announce a campaign to boost awareness of Rett Syndrome in the most iconic of all advertising venues – Times Square in New York City. A newly created public service announcement will run an average of nine times an hour for three months starting November 1st on the colossal 6000 square foot Mediamesh display at the corner of 42nd Street and 8th Avenue. An estimated 1.5 million people are expected to view the PSA daily.
Rett Syndrome strikes little girls almost exclusively, with first symptoms usually appearing before the age of 18 months. These children lose speech, motor control and functional hand use, and many suffer from seizures, orthopedic and severe digestive problems, breathing and other autonomic impairments. Most live into adulthood and require total, round-the-clock care. Rett Syndrome is caused by mutations in a gene called MECP2.
The Rett Syndrome Research Trust is the premier organization devoted exclusively to promoting international research on Rett Syndrome and related MECP2 disorders.
While Rett Syndrome has become a high-profile disorder in scientific circles, it is still fairly unknown in the lay and medical communities; thousands of girls and women remain un- or misdiagnosed. We welcome this unique opportunity to help raise the profile of this disease, which has been dramatically reversed in pre-clinical models.
“I am so thankful to Bill Koenigsberg, CEO and Founder of Horizon Media, who secured this spectacular advertising real estate; Garage Media, owner of the Port Authority Display; A2AMedia, who manages the screen, for giving us the opportunity to showcase our disorder; and Jon Denny, film and TV producer, for creating our PSA. When smart, talented, generous people come together for a good cause, amazing things can happen,” said Monica Coenraads, Executive Director of RSRT and parent of a teenaged daughter severely disabled by Rett Syndrome.
“We are thrilled to help RSRT get out their message for such a worthy cause,” said Bill Koenigsberg.
About the Rett Syndrome Research Trust
The Rett Syndrome Research Trust is the premier organization devoted exclusively to promoting international research on Rett Syndrome and related MECP2 disorders. Our goal is clear: to heal children and adults who will otherwise suffer from this disorder for the rest of their lives. With our experience and tight focus, RSRT has an unparalleled knowledge base and extensive networking abilities in the world of high-level research. This puts RSRT in a unique position to stimulate, evaluate, support and monitor ambitious and novel scientific projects. To learn more about the Trust, please visit http://www.ReverseRett.org
Source: PRWEB
The Rett Syndrome Research Trust is pleased to announce a campaign to boost awareness of Rett Syndrome in the most iconic of all advertising venues – Times Square in New York City. A newly created public service announcement will run an average of nine times an hour for three months starting November 1st on the colossal 6000 square foot Mediamesh display at the corner of 42nd Street and 8th Avenue. An estimated 1.5 million people are expected to view the PSA daily.
Rett Syndrome strikes little girls almost exclusively, with first symptoms usually appearing before the age of 18 months. These children lose speech, motor control and functional hand use, and many suffer from seizures, orthopedic and severe digestive problems, breathing and other autonomic impairments. Most live into adulthood and require total, round-the-clock care. Rett Syndrome is caused by mutations in a gene called MECP2.
The Rett Syndrome Research Trust is the premier organization devoted exclusively to promoting international research on Rett Syndrome and related MECP2 disorders.
While Rett Syndrome has become a high-profile disorder in scientific circles, it is still fairly unknown in the lay and medical communities; thousands of girls and women remain un- or misdiagnosed. We welcome this unique opportunity to help raise the profile of this disease, which has been dramatically reversed in pre-clinical models.
“I am so thankful to Bill Koenigsberg, CEO and Founder of Horizon Media, who secured this spectacular advertising real estate; Garage Media, owner of the Port Authority Display; A2AMedia, who manages the screen, for giving us the opportunity to showcase our disorder; and Jon Denny, film and TV producer, for creating our PSA. When smart, talented, generous people come together for a good cause, amazing things can happen,” said Monica Coenraads, Executive Director of RSRT and parent of a teenaged daughter severely disabled by Rett Syndrome.
“We are thrilled to help RSRT get out their message for such a worthy cause,” said Bill Koenigsberg.
About the Rett Syndrome Research Trust
The Rett Syndrome Research Trust is the premier organization devoted exclusively to promoting international research on Rett Syndrome and related MECP2 disorders. Our goal is clear: to heal children and adults who will otherwise suffer from this disorder for the rest of their lives. With our experience and tight focus, RSRT has an unparalleled knowledge base and extensive networking abilities in the world of high-level research. This puts RSRT in a unique position to stimulate, evaluate, support and monitor ambitious and novel scientific projects. To learn more about the Trust, please visit http://www.ReverseRett.org
Source: PRWEB
A Mid-Michigan Family Shares Their Experience With Rett Syndrome
Source: WLNS.com
Note: Click on the title to read the full news.
Note: Click on the title to read the full news.
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