Stem cells in Rett Syndrome treatment: Video of Family

Please click on the topic to watch it.

Stem cells in Rett syndrome

Beike - Laura

NAME: Laura

COUNTRY: Romania
AGE: 7
DIAGNOSIS: Rett Syndrome

REASON FOR COMING FOR TREATMENT:

Laura was born with Rett Syndrome, a rare genetic disease that causes a neurodevelopmental disorder which is marked by loss of purposeful use of the limbs, balance difficulties and language and socialization developmental problems similar to Autism. Like other children with Rett Syndrome Laura seemed like a healthy child for the first year of her life. By the time she was one year old, she was starting to talk and was able to move around by herself. However in the second year of her life, she started to regress. Both her motor and linguistic skills started to get worse and Laura largely lost most of the abilities she had learned.

TREATMENT: Umbilical cord stem cell and nerve growth factor injections with rehabilitation therapy

BEFORE THE TREATMENT:

Before the treatment started, Laura's condition was similar to that of a highly autistic child. She no longer used the words she had previously learned, and did not respond to other people who talked to her. Her parents felt that she had lost all her linguistic skills and that her memory was very poor. Along with the linguistic deficiencies, she had many motor control problems as well. Her balance became worse and worse and she started to constantly make stereotyped motions with her hands. She could not walk without help, and could not move up stairs or inclines at all.

AFTER THE TREATMENT:

After coming to China twice for stem cell treatments Laura's parents believe her condition greatly improved. They believe physically her balance became much better. She could stand with less of a wide stance, could walk on her own for short distances and could walk up stairs and incline with a little help from her parents. Linguistically and mentally Laura also made great progress. She began to start speaking a few words and became more responsive when other people were talking to her. They also felt her memory improved greatly and she could recognize people that she had seen before.

Rett syndrome Awareness: Parent Interview on Rett syndrome

Rett syndrome Awareness: Parent Interview on Rett syndrome

Parent Interview on Rett syndrome

Dear All,

Posting an interview of Ingrid Harding, Founder and President of Girls power 2 Cure, who has a Rett Angel in her life and doing great job for raising more Awareness of this cause. She was interviewed by Anne Ebeling for a story on Girl Power 2 Cure and Rett Syndrome with Parents TV last Fall.

Please watch this interview by clicking on the title and share it with all your friends and relatives.

Love, Hugs, Prayers,

Rajni Khajuria

Vote for Reverse Rett syndrome Video

Please vote for Reverse Rett syndrome video


Title: Reverse Rett Syndrome - Give Our Girls A Voice

Share it with all and tell others also to vote for this cause

Link: http://extraordinarymeasuresthemovie.com/?videoId=111


Thanks, Regards, Prayers,

Rajni Khajuria

Pharmacology and Genetics of Autism: Implications for Diagnosis and Treatment

Article by

Zoran Brkanac; Wendy H Raskind; Bryan H King
Personalized Medicine. 2008;5(6):599-607

NOTE:Click on the link to read full article

Effect of Topiramate on Seizures and Respiratory Dysrhythmia in Rett Syndrome

Article by

Monisha Goyal MD; Mary Ann O'Riordan MS; Max Wiznitzer MD




Note: CLICK ON THE TITLE TO READ THE FULL ARTICLE

Rett Syndrome: Long-Term Clinical Follow-Up Experiences Over Four Decades

Article by
Bengt Hagberg MD, PhD




CLICK ON THE TITLE TO READ THE FULL ARTICLE
 
 

Rett Syndrome: Model of Neurodevelopmental Disorders

Article by

Alan K. Percy MD; Jane B. Lane RN, BSN

CLICK IN THE TITLE TO READ THE FULL ARTICLE

Source: MEDSCAPE MEDICAL NEWS

Autism Clusters Identified in California

Source: Medscape Medical News